The bleeding disorders community is regularly presented opportunities to partake in surveys or polls from companies with specific research-related interests, but I wanted to create something that was by the community, for the community, with questions aimed at eliciting meaningful feedback on where things stand as the year draws to a close.

Whether you or a family member is living with a bleeding disorder, you work for industry, or you work/volunteer for a HTC, local chapter, or other patient organization, we want your unique feedback on the state of the bleeding disorders community in 2015!

---> Patients & Families, click here! <---

---> HTC/Chapter/Other Care, click here! <---

---> Pharma/Industry, click here! <---

Responses from this survey and the needs that it illuminates will be used by us at BelieveLTD to help guide our program development pipeline, but more importantly, we'll be compiling all the responses, de-identifying them, and sharing them with you - the bleeding disorders community - through our website and by email, so that you can share in this comprehensive snapshot and use the information to benefit yourself, your family, and your local bleeding disorders community.

TimeCapsule2016.jpg

***To be clear: this project has no sponsor, we are not selling the information, we are simply building a big, free overview of how everyone in the community is feeling about the year that was, and the year to come. Our hope is that these annual "time capsules" will provide a valuable resource for us now, and the next generation in the future.***

The survey is only five questions long, and shouldn't take more than 10-15 minutes. There is no financial compensation for participating, but completing it may make you feel awesome! Click on the link below that best fits how you identify yourself in the community (if you wear "multiple hats," feel free to respond from whichever hat you'd like, or respond from multiple perspectives.)

---> Patients & Families, click here! <---

---> HTC/Chapter/Other Care, click here! <---

---> Pharma/Industry, click here! <---

The survey will close on December 10th and results will be shared no later than December 30th, and while our reach in the community is strong, we encourage everyone to share this simple survey with at least two friends in the community; the more responses, the clearer a picture we'll have of our community right now!


Thank you for helping us build a stronger and stronger community!